The last year has seen a number of changes for the IBD BioResource.
- Many more sites have been opened and are recruiting their patients. See a list of those open here.
- Recruitment has increased to approximately 1,000 patients per month as the number of recruiting sites increases.
- The admin team has changed and now comprises Fran, Jonathan, Edith and Hannah.
- In addition the coordinators are now Cathy, Rachel, Laetitia and Deepthy. Sophie went on Maternity leave from January 2018.
The first batches of DNA have been sent for whole genome sequencing (WGS). For an interesting explanation of WGS go to the Genomics England website here. This means that we will be able to get closer to understanding the genes involved in the causes of IBD.
A number of investigators from around the UK, including Exeter, Edinburgh, London, Oxford and Manchester, have applied to access IBD Bioresource participants – and we hope to see the number of users continue to grow in the year ahead.
The start of 2018 will also see the roll out of the Inception cohort. This will involve recruitment of subjects who are new to their IBD diagnosis, and will require rather more detailed sample and data collection. Given their recruitment so early in the disease course this group will be of potentially great scientific value for identifying the determinants of the evolution of specific patterns of disease and treatment response.